Don’t Eat Liquorice, if you have Bartter’s or Gitelman’s

Don’t eat liquorice !!!

Liqourice is a diuretic that causes potassium loss. You can lose potassium and raise your blood pressure.

Read more about it at Wikipedia, or just don’t eat it.

Vitamins and Minerals, How Much to Take?

by Herbert C. Mansmann, Jr. M.D.

In 1990, Sheldon Saul Hendler, M.D., Ph.D., a biochemist at the University of California, San Diego, wrote “Although consumption of the so-called well-balanced diets still thought by some to supply all the vitamins (and minerals) we need in quantities sufficient for the maintenance of good health, there are many situations that place people at an increased risk for vitamin (and mineral) insufficiency (deficiency) states.

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Assume Responsibility for Your Stress

by Herbert C. Mansmann, Jr., M.D.

Purpose

The purpose of this document is to illustrate how one acquires the coping skills to be able to manage his own stress and stress related problems. This will significantly decrease magnesium (Mg) deficiency (MgD) and all of its problems in those that are successful at learning the coping skills.

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Amounts of Potassium & Magnesium in Snack Foods

If you have Bartter’s or Gitelman’s Syndrome you should know that diet alone cannot come close to correcting the potassium and magnesium deficiencies. At the same time, if you are going to eat a snack, you might as well have something that adds rather than detracts from your levels. Looks like a bag of peanuts would be a good choice, and popcorn would be a poor choice.
You may also be interested in a Chart of Foods High in Magnesium

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Support Group Rules

Like most groups, we found the need for a few rules. :)

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Testing for Bartter Syndrome

If patients, especially dehydrated infants and young children, are found to have hypokalemia and a high serum bicarbonate concentration on routine labs and do not correct with potassium and chloride replacement treatment, consider possible renal tubular disorder.

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Survey Results

Results from Mail in Survey

One thing I have noticed in doing the surveys is that the older a person gets the more symptoms they have. A small child has very few which is probably because mom does not know what that child is truly feeling. In the teens the symptoms increase but only slightly. In the 20′s a slight increase and then in the 30′s the person has 10 or more symptoms. By the 40′s the person has most of the symptoms listed below. This could be because the person has had it longer so they are more aware of their symptoms or it could be that as we age the symptoms will increase.

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Sample Doctor Letter

Many patients have had great difficulty obtaining appropriate treatment in emergency situations. Hospital emergency rooms staff are usually not familiar with Bartter’s or Gitelman’s Syndromes. Patients are often given inadequate treatment through a combination of lack of familiarity with these rare conditions and disbelief when patients try to describe their condition and how it should be treated.

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Genetics

Genetics is the study of heredity, the passing of traits from parents to their children. Physical traits such as eye color are inherited, as are biochemical and physiologic traits, including the tendency to develop certain diseases.

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A Few Doctors We Like

We are trying to put a list together of Doctors who specialize in the treatment of Bartter’s and Gitelman’s Syndrome. The few names we have listed here are of Doctors who really helped at least one of us.

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