Survey Results

Results from Mail in Survey

One thing I have noticed in doing the surveys is that the older a person gets the more symptoms they have. A small child has very few which is probably because mom does not know what that child is truly feeling. In the teens the symptoms increase but only slightly. In the 20′s a slight increase and then in the 30′s the person has 10 or more symptoms. By the 40′s the person has most of the symptoms listed below. This could be because the person has had it longer so they are more aware of their symptoms or it could be that as we age the symptoms will increase.

Total of 78 respondents, 55 female, 23 male

19 had unsure/combination diagnosis, 22 had Gitelmans, and 36 had Bartters

Updated January 13, 2002

UNSURE/COMBINATION RESULTS. 19 RESPONDENTS, 15 FEMALE, 4 MALE

  • Leg cramps – 16 (84%)
  • Fatigue – 18 (95%)
  • Migraines – 10 (53%)
  • Burning Feet – 6 (32%)
  • Numbness of hands and feet – 15 (79%)
  • PMS – 9/15 (60%) Based on Female Results
  • Nausea/Vomiting 8 ( 42%)
  • Diarrhea 12 (63%)
  • constipation 11 ( 58%)
  • stomach cramps 11 ( 58%)
  • hair loss 4 (21%)
  • Confusion 11 (58%)
  • memory loss 11 (58%)
  • polydipsia 14 (74%)
  • polyuria 14 ( 74%)
  • Weight Loss 6 ( 32%)
  • Weight Gain 9 (47%)
  • eyeglasses 8 (42%)
  • Short Stature 6 (32%)
  • Hot all the time 4 (21%)
  • excessive sweating 5 (26%)
  • Increased Hunger 6 (32%)
  • Blurred Vision 10 (53%)
  • Cold all the time 11 (58%)
  • Loss of appetite 9 (47%)
  • Fainting 4 (21%)
  • Blackouts 3 (16%)
  • Lightheadedness 15 (79%)
  • Irritability 13 (68%)
  • Depression 11 (58%)
  • Heavy Menses 5/15 (33%)
  • No Menses 3/15 (20%)
  • Low Blood Pressure 11 (58%)
  • Vertigo 14 (74%)
  • Ataxia 6 (32%)
  • dysphagia 3 (16%)
  • Joint Pain 12 (63%)
  • Muscle Cramps 13 (68%)
  • Nystagmus 4 (21%)
  • Heart Palpitations 10 (53%)
  • Salt Craving 15 (79%)
  • Leg Edema 2 (11%)
  • Dehydration 7 (37%)
  • Bedwetting until puberty 2 (11%)
  • Unrestful Sleep 2 (11%)
  • Back Pain 2 (11%)
  • Tingling hands and arms 2 (11%)
  • waxy ears 1 (5%)
  • Clumsiness 1 (5%)
  • Abnormal Menstrual Cycle 4/15 (27%)
  • Seizures 1 (5%)
  • Hypertension 1 (5%)

GITELMAN PATIENTS TOTAL OF 21 SURVEYS 14 FEMALE 7 Male

  • Leg Cramps 18 (86%)
  • Fatigue 20 (95%)
  • Numbness of hands and feet 12 (57%)
  • Burning feet 2 (10%)
  • Migraines 11 (52%)
  • PMS 8/14 (57%) Using percents for female patients
  • N/V 12 (57%)
  • Diarrhea 15 (71%)
  • Constipation 7 (33%)
  • Seizures 5 (24%)
  • Stomach Cramps 16 (76%)
  • Hair Loss 3 (14%)
  • Confusion 10 (48%)
  • Memory Loss 9 (43%)
  • Polydipsia 16 (76%)
  • Polyuria 17 (81%)
  • Weight Gain 8 (38%)
  • Weight Loss 7 (33%)
  • Short Stature 7 (33%)
  • Eyeglasses 11 (52%)
  • Cold All the time 7 (33%)
  • Hot all the time 6 (28%)
  • Loss of appetite 5 (24%)
  • Excessive Sweating 6 (28%)
  • Fainting 4 (19%)
  • Blackouts 5 (24%)
  • Lightheadedness 14 (66%)
  • Blurred Vision 13 (66%)
  • Increased hunger 9 (43%)
  • Irritability 12 (57%)
  • Depression 15 (71%)
  • Heavy Menses 3/14 (21%)
  • No Menses 2/14 (14%)
  • Abnormal Menstrual Cycle 7/14 (50%)
  • Low Blood Pressure 8 (38%)
  • High Blood Pressure 3 (14%)
  • Vertigo 9 (43%)
  • Ataxia 3(14%)
  • Dysphagia 1 (5%)
  • Joint Pain 13 (62%)
  • Muscle Cramps 19 (90%)
  • Nystagmus 3 (14%)
  • Heart Palpitations 14 (66%)
  • Dehydration 11 (48%)
  • Salt Craving 18 (86%)
  • Weakness 2 (9%)

BARTTER SURVEYS TOTAL OF 30 RESPONSES 23 FEMALE 7 MALE

  • Leg Cramps 22 (73%)
  • Fatigue 30 (100%)
  • Migraines 21 (70%)
  • Burning feet 7 (23%)
  • numbness of hands and feet 23 (77%)
  • PMS 12/23 (52%) Using percents for female patients
  • Nausea/Vomiting 16 (53%)
  • Diarrhea 20 (66%)
  • Constipation 10 (33%)
  • Stomach Cramps 18 (60%)
  • Seizures 4 (13%)
  • Hair Loss 7 (23%)
  • Confusion 16 (53%)
  • Memory Loss 11 (37%)
  • Polydipsia 25 (83%)
  • polyuria 24 (80%)
  • Weight Loss 8 (27%)
  • Short Stature 15 (50%)
  • Eyeglasses 17 (57%)
  • Blurred Vision 10 (33%)
  • Hot all the time 6 (20%)
  • Excessive Sweating 6 (20%)
  • cold all the time 7 (23%)
  • Loss of appetite 11 (37%)
  • Increased hunger 7 (23%)
  • Fainting 8 (27%)
  • Vertigo 1 (3%)
  • Weight Gain 15 (50%)
  • Blackouts 6 (20%)
  • Lightheadedness 18 (60%)
  • Irritability 16 (53%)
  • Depression 16 (53%)
  • No Menses 4/23 (19%)
  • Heavy Menses 5/23 (22%)
  • Abnormal Menstrual Cycle 8/23 (35%)
  • Low Blood Pressure 15 (50%)
  • High Blood Pressure 3 (10%)
  • Vertigo 10 (33%)
  • Nystagmus 4 (13%)
  • Ataxia 9 (30%)
  • Dysphagia 5 (17%)
  • Joint Pain 17 (57%)
  • Muscle Cramps 20 (67%)
  • Heart Palpitations 19 (63%)
  • Dehydration 25 (83%)
  • Salt Craving 29 (97%)
  • Lower Back Pain (3%)
  • Gout (3%)
  • Early Endometrial Cancer 2 (7%)
  • cystic Breast disease (3%)
  • Abdominal Hernias (3%)

TOTAL OF ALL SURVEYS. 78 RESPONSES. 55 FEMALE 23 MALE

ALL RESPONSES

  • Leg cramps 53 =70%
  • Fatigue 67 = 86%
  • Migraines 40 = 51%
  • Burning Feet 15 = 19%
  • Numbness of hands and feet 48 =62%
  • PMS 29/55 = 53%
  • Nausea/Vomiting 35=45%
  • Diarrhea 45 = 58%
  • Constipation 27 =35%
  • Seizures 9=12 %
  • Stomach cramps 38 =49%
  • Hair loss 13 = 17%
  • Confusion 36 = 46%
  • Memory loss 29 = 37%
  • Polydipsia 53 = 70%
  • Polyuria 56 = 72%
  • Weight Loss 19 = 24%
  • Weight Gain 31 =40%
  • Eyeglasses 35 = 45%
  • Short Stature 28 = 36%
  • Hot all the time 15 = 19%
  • Excessive sweating 16 = 20%
  • Increased Hunger 22 = 28%
  • Blurred Vision 33 = 42%
  • Cold all the time 24 = 31%
  • Loss of appetite 24 = 31%
  • Fainting 15 = 19%
  • Blackouts 12 = 15%
  • Lightheadedness 45 =58%
  • Irritability 37 = 47%
  • Depression 37 = 47%
  • Abnormal Menstrual Cycle 17/55 = 31%
  • Heavy Menses 13/55 = 24%
  • No Menses 8/55 = 15%
  • Low Blood Pressure 32 = 41%
  • High Blood Pressure 6 = 8%
  • Vertigo 32 = 41%
  • Ataxia 17 =22%
  • dysphagia 9 = 11%
  • Joint Pain 39 = 50%
  • Muscle Cramps 48 =61%
  • Nystagmus 10 =13%
  • Heart Palpitations 38 = 49%
  • Salt Craving 62 = 79%
  • Leg Edema 4 = 5%
  • Dehydration 39 = 50%
  • Bedwetting until puberty 3=4%
  • Weakness 1 =1%
  • Back Pain 3 =4%
  • Restless Leg Syndrome 4 (5%)
  • Numbness around the mouth 1 (1%)
  • Short of Breath 1 (1%)
Print This Post Print This Post